Help us to change the way the world looks at your disease and contribute to the development of new medicines for BP.

The Bridge Registry was developed for patients with Bullous Pemphigoid (BP),  in collaboration with the International Pemphigus and Pemphigoid Foundation (IPPF)
The Bridge Registry was developed for patients with Bullous Pemphigoid (BP),  in collaboration with the International Pemphigus and Pemphigoid Foundation (IPPF)
The Bridge Registry was developed for patients with Bullous Pemphigoid (BP),  in collaboration with the International Pemphigus and Pemphigoid Foundation (IPPF)
The Bridge Registry was developed for patients with Bullous Pemphigoid (BP),  in collaboration with the International Pemphigus and Pemphigoid Foundation (IPPF)

Help Us to Change Conventional Wisdom

The public does not appreciate that BP can be a severe debilitating condition. Join with your peers to help create an accurate and up-to-date picture of what it is like to live with BP.

 

Help Us to Develop New Medicines

Today there are no medicines approved by the FDA for the treatment of BP. You participation will help create a deeper understanding of what goes wrong in BP so that new medicines can be developed.

 

Help Us to Teach Clinical Practitioners

Let the Registry help you integrate your medical records related to BP, making sure that relevant labs, treatments, and disease-related complications are identified, so that together we can better capture the severity of this disease and thereby change medical practice.

 


Click here to register now!

Every disease community should have a common, accessible patient registry.

We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.

But registries are hard to maintain.

Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.

Patient Crossroads is here to fix all of that.

Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.